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Understanding the outcomes of BOTOX® treatment for spasmodic dysphonia from the client’s perspective
Carolyn R. Baylor, Kathryn M. Yorkston, Tanya L. Eadie, Nicole Maronian

This study examined the psychosocial consequences of BOTOX® treatment for spasmodic dysphonia (SD). This paper also explored how clients judge the success of treatment and make decisions about future treatment based on psychosocial issues relevant to them. Six adults with SD who had been receiving BOTOX® injections on a long-term basis participated in face-to-face interviews. The interviews were analyzed according to phenomenological guidelines for qualitative inquiry to identify consistent themes as well as differences among participants’ experiences. The results are summarized in three themes that suggest (1) participants’ experiences with BOTOX® change over time based on changes in many factors such as lifestyle and personal priorities; (2) BOTOX® has multidimensional psychosocial implications in physical, personal and social domains; and (3) participants tailor their treatment regimens by considering the burden of treatment, scheduling priorities and other strategies to maximize the benefits of BOTOX®. Suggestions are provided for future research into psychosocial outcomes of BOTOX® intervention for SD including longitudinal evaluations that accommodate changing patient priorities over time; multidimensional evaluations that incorporate physical, personal and social issues; evaluations that include a measure of the burden of treatment; and evaluations that support a shared decision-making model with the voice clinicians.

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