If you are like many people who have experienced a catastrophic injury or illness, your stay in the acute care hospital or trauma center was punctuated by the thought "Thank God, I survived!" But now the long road of rehabilitation has begun, and it is totally new territory for you. To help you through the next few steps on your journey, it might be helpful to visit with someone who has a child who experienced a similar injury or illness and has been through rehabilitation.
Madonna Rehabilitation Hospital's Peer Volunteer Program matches parents of children who have completed rehabilitation with people who are just starting the process of rehabilitation for the purpose of sharing meaningful life experiences and providing hope for the future. Adolescents who completed rehab are also available as a peer volunteer.
Peer Volunteers contribute in a number of ways, including:
The Alexis Verzal Children’s Rehabilitation Hospital hosts a Parent Night twice a month, ran by a mother whose child has been through rehab, for members from the community as well as families currently in rehab. Parent Night offers comfort and socialization, along with education and insight for parents of children with acquired injuries. Please see your social worker for the date and time of Parent Night.
The following are links to various websites with information for children, adolescents and their family members following a disabling injury or illness.
by Susan Fager, Ph.D. CCC-SLP and Collen Spellman, OT
Published in the Journal of Pediatric Rehabilitation Medicine.
Safe Kids Lincoln Safe Kids Lincoln-Lancaster County is a coalition, including Madonna Rehabilitation Hospital, that promotes child passenger safety, child pedestrian and bicycle safety, sports injury prevention, fire and burn prevention, water safety and home safety.
www.hemikids.org Children with Hemiplegia - an email support group for parents
www.childrensdisabilities.info Articles and resources empowering parents of children with disabilities and special needs
www.chasa.org Children's Hemiplegia and stroke support
www.biausa.org Brain Injury Association of America - information about brain injury, resources, and a variety of other topics such as driving, family dynamics, etc
www.lapublishing.com Publications on brain injury in children and adolescents
www.caregiver.org Information for family members
www.ems-c.org Emergency medical services for children
www.spinalcord.org Information about spinal cord injury
www.atp.ne.gov Information about assistive technology in Nebraska
www.at4all.com Free on-line service to list and find equipment in Nebraska
www.ndss.org National Down Syndrome Society
www.nationalautismassociation.org Information and resources for children with autism
www.answers4families.org Provides information, education and support for Nebraskans with special needs and their families
www.nrrs.ne.gov Up to date information on community agencies and organizations that provide services and resources to Nebraskans
www.pti-nebraska.org A Nebraska state-wide resource for families of children with disabilities and special care needs