Around the Web: National Resources

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals.

Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members – veterans of the armed forces who have experienced spinal cord injury or dysfunction.

The Accessible Icon Project is an ongoing work of design activism. It starts with a graphic icon, free for use in the public domain, and continues its work as a collaborative effort among people with disabilities and their allies toward a more accessible world.

Directory of Independent Living Centers maintained by MetroWest Center for Independent Living, Inc.

Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.

The National Institute of Health SCI Information page provides the latest research and connects to related organizations.

Makoa, which is a Hawaiian word for “courageous,” is the name of a site managed by Jim Lubin, who is completely paralyzed from the neck down and uses a keyboard/mouse emulator with a sip and puff switch to type morse codes.

Around the Web: Regional Resources

The vision of AgrAbility is to enable a lifestyle of high quality for farmers, ranchers, and other agricultural workers with disabilities, so that they, their families, and their communities continue to succeed in rural America.

Around the Web: Iowa Resources

The mission of the Iowa Vocational Rehabilitation Services is to work for and with individuals who have disabilities to achieve their employment, independence and economic goals.

The Iowa Program for Assistive Technology (IPAT) helps Iowans find out about and get the assistive technology (AT) they need as part of their daily lives to learn, work, play, and participate in community life safely and independently.

Around the Web: Nebraska Resources

The League of Human Dignity works with people who have disabilities to promote independent living and ensure social, economic, and political equality.

Independence Rising serves 39 counties in south-central and southwest Nebraska, offering  services to people with disabilities in order to help them meet their goals for independence.

Nebraska Vocational Rehab helps people with disabilities prepare for, find and keep jobs.

When there is someone in your family with special needs, you may find yourself looking for answers. Answers4Families.org is Nebraska’s support and information connection for families and professionals seeking assistance.

PTI Nebraska is a statewide resource for families of children with disabilities or special health care needs.  PTI Nebraska empowers parents and provides them the knowledge and capacity to improve the education and healthcare outcomes for their children.

Around the Web: Kansas Resources

The Whole Person offers a broad range of services to individuals with disabilities to increase their ability to perform day-to-day activities and reduce the need of support from family members, professional attendants or other caregiving services.

Around the Web: Missouri Resources

If you want to work but have a disability that keeps you from finding, keeping or advancing in a job, Vocational Rehabilitation (VR) may be able to help you. VR specializes in employment and training services that can assist you in becoming employed.

The Whole Person offers a broad range of services to individuals with disabilities to increase their ability to perform day-to-day activities and reduce the need of support from family members, professional attendants or other caregiving services.

Missouri Assistive Technology strives to increase access to assistive technology for Missourians with all types of disabilities, of all ages.

Support Groups

Madonna offers a support and educational group as part of the spinal cord injury program. For meeting times, contact Diane Ulmer at 402.413.3185.

There are also survivor and family support groups throughout Nebraska and surrounding regions. For specific details regarding support groups in your area, speak to your Madonna social worker.

Peer Support

Madonna’s Peer Volunteer Program matches those who have completed rehabilitation with people who are just starting the process of rehabilitation for the purpose of listening, sharing meaningful life experiences and providing hope for the future. Adolescents, who completed rehab, or parents of adolescents, are also available as a peer volunteer.

Peer volunteers can:

  • Share information about the Madonna rehabilitation experience
  • Answer questions about the day-to-day experience
  • Visit individually with a patient and/or a family member

Glossary

Refer to this page for definitions to terms often used regarding spinal cord injury rehabilitation.

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