Around the Web: National Resources

The Children’s Hemiplegia and Stroke Association (CHASA) exists to help children – children who have survived an early brain injury that results in hemiplegia or hemiparesis (weakness on one side of the body).  We also help adults who have been living with a diagnosis of hemiplegia since childhood.

Hemi-Kids is an email discussion group where parents of infants and children who have mild to moderate hemiplegia or hemiplegic cerebral palsy share information.

Articles and resources empowering parents of children with disabilities and special needs.

Information about brain injury in children from the Brain Injury Association of America.

Leading source of information and training on brain injury, blast injury and PTSD in children, adolescents, adults and veterans.

The Family Caregiver Alliance’s mission is to improve the quality of life for caregivers and those they care for through information, services, and advocacy.

The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Around the Web: Nebraska Resources

AT4ALL lists equipment for all ages available for loan, demonstration, free or for sale, brought to you by Nebraska Assistive Technology Partnership (ATP).

When there is someone in your family with special needs, you may find yourself looking for answers. Answers4Families.org is Nebraska’s support and information connection for families and professionals seeking assistance.

Safe Kids Lincoln-Lancaster County is a coalition, including Madonna Rehabilitation Hospital, that promotes child passenger safety, child pedestrian and bicycle safety, sports injury prevention, fire and burn prevention, water safety and home safety.

Statewide database created with input from Nebraska families, service providers and organizations to give individuals the opportunity to locate and compare services of local and state agencies.

PTI Nebraska is a statewide resource for families of children with disabilities or special health care needs.

Support Groups

The Children’s Rehabilitation Unit hosts parent a support group one to two times a week for both inpatient and outpatient families. The approach is to consider educational topics and offer a forum for parent-to-parent support. Madonna team members facilitate the group.

Peer Support

Madonna’s Peer Volunteer Program matches those who have completed rehabilitation with people who are just starting the process of rehabilitation for the purpose of listening, sharing meaningful life experiences and providing hope for the future. Adolescents, who completed rehab, or parents of adolescents, are also available as a peer volunteer.

Peer volunteers can:

  • Share information about the Madonna rehabilitation experience
  • Answer questions about the day-to-day experience
  • Visit individually with a patient and/or a family member
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